There is a grey area in the field of endometriosis. Most people do not know it even exists. It effects 1 in 10 women.

EndoStats originated from finding out 176 million women+ 68% misdiagnosed were living with pain - and most weren't being listened to or treated with the best methods. EndoStats displays the social impact, as well as, the illness in stats we live with.

Where EndoStats is inspired from - is the voices of  the many women and girls not being heard. By bringing together everyone who is impacted by endometriosis into the conversation - gives us all more insight into the depth of our health.

When we bring a large community together - with a march to stand up for our rights, a support group of true friendships or collaborating with the knowledge in the field  -  real change can be made.

STATS
With the impact on young girls and to interact with cultures and languages around the world - the information was made clear and simple. Statistic infographics have links for further reading and details from leaders in the field of endometriosis research.

SYMPTOMS
After discovering the depth and spread of the symptoms that are associated with endometriosis, we find how it effects the whole body.

SURVEY
The crowd of women who have endometriosis have come together in order to bring more awareness into our cycle symptoms.  Connecting the information from women around the world, with openness and friendship, has brought each of us strength and the ability to trust what is going on with our health.

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“There is delay in diagnosis of between 7 and 10 years. Raising awareness is the first step to reducing the delay in diagnosis across all age groups. Education about menstrual health, what is normal and what is not is vital in younger age groups to break the current cycle of delay in diagnosis and flow on affects for the next generation.”  Ballard, K. Lowtan, K. Wright, J. 2006 & Dessole, M. Benedetto Melis, G., Angioni, S., 2012
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United States
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Spain
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Ghana
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Canada

One of the many stories that are driving the awareness of the depth of endo.

Julie's Endometriosis Story:
25 Years of Pain   |   14 Doctors
12 Years of Research  

3 Surgeries
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Took 10 years 2001
  • Diagnosed the 1st time
15 years later 2015
  • Un-Diagnosed the 2nd
EndoStats was created 
1 year 2016
  • Re-Diagnosed the 3rd
1 year 2017
  • Waiting for a 4th
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= Pelvic and Thoracic Endometriosis