Endometriosis is a NCD - a noncommunicable disease that effects over 176 million women. People with illness are being part of the conversation over policy and action that influences their lives. I was fortunate to represent women with endometriosis with my story and health information in Geneva to define the agenda for updates to policy for the 2018 United Nations - High Level meeting. It was amazing working with this amazing bunch.
Workshop in Geneva: https://ncdalliance.org/news-events/news/together-we-are-stronger
NCD Alliance: ncdalliance.org/news-events/news/advocacy-agenda-of-people-living-with-ncds-takes-centre-stage
Personal stories reflect the need to have endometriosis join the conversation on NCD policy and action with the World Health Organization. SHARE YOUR STORY: apps.who.int/ncds-and-me/
While doing research to understand what what going on with my health, Shannon Cohn brought to life what we endure in the medical field and society with endometriosis in the film EndoWhat.com. Supporting this production with Indiegogo and bringing awareness to thousands of women, professors and doctors.
After being diagnosed in 2001 and then UN-diagnosed in 2015, I did my own research and discovered not only do I have endometriosis but also thoracic endometriosis. I thought I was rare but realized that 68% of women were being misdiagnosed. There are many myths about this illness out there and I wanted a place for women and girls to be able go to for honest, simple endometriosis information.
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